Last week my little 18-months old nephew was flown to Children's Hospital in Oakland. He got sick with E.Coli. At first, things looked like he was fairly sick, but would be fine. Then things went downhill quickly as he developed a bunch of rare, but very serious complications, the main one being HUS (it destroys red blood cells). The little guy was on dialysis, due to kidney failure, a oscillator, because his lungs got damaged when he inhaled vomit, and then his intestine started getting necrotic. On Wednesday things looked really bad, and we all thought he'll not survive all the complications that kept piling up on him. He had surgery on Wednesday that doctors were afraid to perform due to his low red blood cells, but felt forced to do because otherwise death seemed certain. He has pulled through surgery 1. Today, he'll have more surgery, but he seems to have recovered a bit in the meantime. We're hopeful.
However, obviously, this has been hard for everyone, and particularly terrifying and heart-wrenching for his parents. I cannot imagine anything more heart-breaking and difficult than to see your child suffer, unable to help, just watching, and hoping for the best, but having to deal with the reality that your child may die. It just pulls every singe heart-string in a painful way. And in these trying times, it seems natural to me that we pull on all and everything that will give us a measure of hope, peace, strength and control in a situation that is usually so out of our control.
My brother-in-law called us all on Wednesday night to ask us to read our scriptures, pray and write in our journals each day. He felt that if we all did those things every day, that God may be able to heal his little son. We said we'd do that, and that we want to support them any way we can. And we really do.
However, when we hung up the phone, I told Henry that I haven't written in a journal in 15 years, and I'm sure not starting again now. My main issue was that while I think prayers, and fasts, and scripture study, and even journal writing can bless us personally, or can even unify us in intangible bonds, and strengthen us through this bond of unity and love, I do not believe that such things will alter the outcome of someone's life. Basically, I just do not believe that God will hold a little child hostage, and try to push us to action by threatening their life. I cannot believe that a God will spare someone's life if they do X, Y and Z, but if not, will let them die. When I take this situation outside of a religious realm, it would be an extremely emotionally manipulative situation. Imagine someone being able to help your child (a doctor), but they say they will only do the necessary acts to preserve the life of your child if you start exercising for 1 hour every day and get all your friends to do the same.
It's certainly doable. But it would be a very coercive situation where the life of your child is put in the equation for other peoples' willingness to do something. If the child dies, the blame will be on everyone who was unwilling or unable to start exercising to spare the child's life.
I just cannot believe God works like that. So, I really don't think my reading my scriptures, or praying or writing in my journal will save my little nephew. I really don't believe it. More importantly, I don't believe that someone else receives inspiration for what I should do. So, even though I'm sure my brother-in-law did have the thought that doing these things will help, I don't actually believe that it was true inspiration, because I just don't think he'll receive inspiration as to what I or anyone else should or need to do. Nope. I don't believe that either.
So, as I've seen my extended family struggle through these trying times, I've been pondering how we use and view our faith in these situations. There have been emails going around with verses from the scriptures that teach how everything serves a purpose and that we can learn from hardship. I think they were supposed to comfort us, and yet I only found them annoying, because I don't find that comforting. Yes, we can always pull out something positive from truly awful situations, but to me that doesn't mean that situation is good or desirable nor that God actually WANTS that horrible thing to happen.
Which is one of the main things I've thought about. I don't actually believe God gives us trials. I don't. I don't think God wants us to suffer. I don't think he wants couples to be infertile. I don't think he wants little kids to die. I don't think he wants anyone to get sick. I don't think he wants anyone to be lonely or get abused or neglected. I don't think he wants anyone to lose their jobs, or have any other difficulties. I think God wants us to be happy. That all he wants for us is to just be happy. However, I do think he knew that when we entered mortality that that wouldn't happen all the time. We all knew there would be pain, suffering and hardship - not because God made it so, and often not even because we brought it upon ourselves through our choices, but just because that's what mortality does. When crap happens, I don't see it as a trial given to me by God - I see it as a consequences of living in a mortal world. Sometimes crap may happen because someone chose to be a horrible person (ie. abuse, murder, and that kind of stuff). Sometimes stuff just happens because we live in mortal bodies (ie. illness, death, infertility and those kind of things). Yet, a lot of Mormons make God responsible for the individual hardships, as well as the individual positive things.
I struggle with that. Mostly, because as much as I want to acknowledge God's hand in all things, I cannot accept a God who would willfully and on purpose PUSH for certain horrible things to happen. It's different to me to envision a God who knows that we will experience pain as we enter a certain situation, but that we chose that, and that he supports that choice vs. a God who's involved directly in allowing or pushing for certain bad things to happen. Nononono. My God does not make babies die. He does not starve his children or inflict hardship on them. No. We might, or our mortal state may, but not God.
The hard part about this is that my disbelief in a God who gives us pain and hardship, also includes a lack of belief in a God who works a miracle if we have enough faith/do X, Y or Z. I know there are examples in the scriptures of miraculous things happening. And I don't want to say that I don't believe in miracles, because in a way I do. And I think I've even witnessed things that seem to go beyond sheer luck or coincidence. So, somehow I believe in supernatural events. But then again, I feel deeply uncomfortable with our conclusions how these come to be. If you have hundreds of people pray for someone, and have full faith that all will be well, and that person still dies - did they really not have enough faith? Did they just not do enough of the "right things"? Where does this leave anyone who's not even a Christian? Are they automatically doomed because they don't have the right connections? Will God punish someone for the "sins" of another person? Will he stay his hand, when there isn't enough faith/righteousness? I just cannot, CANNOT believe it.
I'm not sure when and if God gets involved and works a miracle. I do think that our own perspectives can influence how we view things and can thus influence a positive outcome. For example, someone who has faith that if they pray for help to find their keys, will have some divine help, may search and look differently than someone else without that perspective. Maybe they're more relaxed as they look. Maybe they'll check every illogical place when they think about checking it, because they consider it inspiration, and thus set themselves up for a better outcome. When the keys are found, it's a prayer answered. But did God really guide them and alter the outcome? Or did our faith, our perspective and willingness to tackle something differently than we might up lead to the desired outcome?
As I said, I do think prayer, fasting, scripture study etc. are useful and important things. I feel they help us tune in to ourselves and to our Heavenly Parents. I think they alter how we see the world, others and ourselves, which in return can bring us increased peace as we understand and handle things differently than we otherwise would. But I don't think a group fast will improve the chances of someone getting healed. I don't think the number of people praying will change the results. Maybe the sense of support, and positive thoughts/love coming someone's way will improve their resilience and thus help their chances of survival. So, again, I'm not saying praying etc. are pointless. I just can't get behind the idea that doing those things will lead to healing, and not doing them worsens the situation or something.
I think God's commandments are given to us, mostly to change us - not someone else. Also, I think it's interesting that my brother felt we should write in our journals along with prayer and scripture reading...like, it's a commandment? Because, really it isn't.
I guess, mostly, I'm just thinking about what we do when our backs are pushed against the wall. My extended family seems to find a lot of comfort right now in praying a ton, and passing around scriptures, and going to the temple and all. I feel annoyed. The citing of scriptures doesn't make me feel better. I already know those scriptures. It doesn't ease the worry or pain at all for me. At all. I feel in fact that it brushes the seriousness and the very real pain aside somehow.
Ok, I need to stop. I think I realize that everyone has very different coping strategies when the going gets rough. I realize the gospel is supposed to comfort us in these times, and to me there is comfort in gospel understanding. I guess I just look at a very different gospel than my family, and so I feel in an uncomfortable spot.
At the end of the day though, I just want my little nephew to get well. Whatever it takes. I just don't want anyone have to bury their children, especially not family. I hope he will be ok. I feel confident that things will work out. There's no real reason for me to think that other than that's just how I've felt all along. He'll pull through and be ok. Inspiration? Me tapping into the vibes of the universe? Or just my personality? Who knows.